The Verdict

Today we went to our follow up with the GI doctor. She weighed in at 13lbs 4.5 oz. We gained a whopping 1/2 an ounce. The only reason we did not lose weight was because we have added more formula to her bottles making each 2 oz. 27 cals versus 20 cals. We have been recording how much she eats each day and once the doctor saw that she had not gained weight or improved in her eating from the Prevacid we made the decision to schedule a needed procedure. Next Thursday we are going to have an endoscopy done on Kaylie. The only thing I am worried about is the anestegia. She has had to be put under for her tubes so I know she can handle it but it still scares me. Right now I am not too concerned about what they might find. He told me one thing he thinks might be going on. He thinks, and seems pretty confident, that she has Eosinophihlic Esophagitis. After reading up on it Jason and I think this may be what is going on.


Here are some of the symptoms Kaylie has that would relate to this disorder:
* She has Atopic Dermatitis which is the same as Excema
* Asthma, hay fever
* difficulty swallowing
* coughs while eating
* occasional vomiting
* failure to thrive - means can't gain weight
* major acid reflux when she was younger

(Here is a site that explains what an upper endoscopy is. http://www.webmd.com/heartburn-gerd/guide/upper-endoscopy)

( Here is a site that explains what EE is http://www.medicinenet.com/eosinophilic_esophagitis/article.htm)

Please pray that this procedure will give us some needed answers. We have struggled with feeding since she was born and have always felt that something else needed to be done. Nothing could be done until she started to lose weight. Please pray that nothing major is going on and that this is something that can be cured with very little intervention.

To be positive Jason and I feel that all of her health concerns could possibly be related to this. Their is a possibility that this could be the cause of all of her upper respiratory concerns and may even do away with them. She was recently diagnosed with chronic lung and hopefully with our findings this will no longer be a true diagnosis and we can stop the medications that are used for this.

(Site for chronic lung disorder: http://children.webmd.com/tc/chronic-lung-disease-in-infants-topic-overview)

No matter what Jason and I know we can help Kaylie get through this. We have wonderful friends and family that love us and support us and for that we thank you! I think we all want the same thing...for her to be healthy and happy! The thing I remind myself is that she will not remember any of this.

After all of this how could I not take some pictures of her. Enjoy!




No, she did not do this on her own.