Good news/bad news

Good news:
This afternoon Kaylie's GI doctor called with the results from the biopsy. As expected everything came back normal.

Bad news:
We still have major feeding issues. In the past week we have pretty much cut out all solid foods in hopes that we would find the answer ourselves. Jason and I are concerned that she is having food allergies that could be causing her to choke and eat less. We figured by eliminating solids we could see if she started to drink more. This helped very little. After talking with him for a good 10 minutes we decided a few things.
1) We are going to put her on periactin. Periactin is an antihistamine that will be used as an appetite stimulant. It takes about 2 weeks to work. We are starting her on a medium dose so if we see that this is starting to work we will increase it even more. Once we give this some time to see if it works, we are going to look into the next part.
2) If the periactin works we are going to add feeding therapy in. This will be an intensive program designed to get children to eat. It is definitely more intensive than anything ECI would do. He wants to do this because he thinks part of what is going on is a learned behavior. Since she has struggled for so long with her feeding he thinks she may have figured out it hurts keeping her from eating.
3) After a few weeks we will go back in to check on her progress. If the above does not work we and she has not gained sufficient weight we will temporarily put in a feeding tube. This would only be for a few weeks to Right now one of his goals is to get her eating and to put weight on her. Babies should always gain and never lose. If they lose do to increased activity or illness they should be able to recover quickly. She should be gaining anywhere from 1/2 an oz. to 1 oz. a day. We are no where near that.
4) If all of that does not work then we will continue with the testing to see if we can figure out what else might be happening. He will do an MRI to see if she has a lesion on her brain that could cause difficulty with eating. This would also give us the opportunity to see if she has Cerebral Palsy or if she had a stroke at birth. This is something we have been watching for awhile due to the lack of movement on her left side. The good thing is if she does have Cerebral Palsy it is very mild. She now uses her left side like a champ and continues to move her left side more and more. I am definitely not as concerned about that as I used to be.

So to recap:
*Starting appetite stimulant - should work in about 2 weeks
*Taking her off solids for a few weeks and then reintroducing them after we have been on the medication for awhile
* Feeding therapy if above works
* Possibly feeding tube if she does not gain enough weight
* Possible MRI to check for lesions that may relate to feeding issues

Thanks for all your thoughts and prayers. We appreciate it!