So far so good. Kaylie did her usual walk in, figure out it is a doctor type setting and scream. If they tried to do anything other than listen to her breath she would scream. Eating wise, same old same old. They let us do what we would normally do and then she will officially start the "program" tomorrow. In between feedings we had many visits from everyone that is involved in her care. When we were not doing that we were playing. By the time bed time came around she was exhausted, screamed very little and then passed out. Much different experience than when she went down for her nap. It doesn't help that the crib they have her in looks like a prison cell for a baby.
Today's weight: 16 lbs. 7 oz. She has lost 1 1/2 oz. from our last weight check. They are not going to give her a whole lot of time to determine if she will need a feeding tube or not. Chances are she will. She can not afford to lose any more weight.
I forgot what it felt like to be in a hospital setting. We are back to measuring all of her food and her diapers to check for hydration. Even the smell of the soap brings back weird memories.
Most likely I will not do daily emails so don't get your hopes up =).
Overall, if I was to rate the day I would give it an A. Things have gone smoothly. Hopefully, I will not change my opinion after I am in bed. =)
上 蒼い子 777527-蒼い子
4 years ago

2 comments:
I'll be thinking about you. Miss you.
Hang in there! We are praying for you guys daily!
Hannah
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