Gray Area

First thing this morning our absolutely wonderful GI doctor called us with Kaylie test results from her upper endoscopy. The two main things they were looking for were eosiniphilic esophagitus (EE) or thrush of the esophagus.

The first time Kaylie had this procedure done she had just turned 1 and everything came back perfect. This time some things had changed. Dr. An told me that she has esinophils in her esophagus. These are the white dots that he saw when he did the procedure. Last time she had 0 this time she has 15. This is where we come to the "grey area." 20 is the magic number that would diagnose her with EE and since she is so close he and the pathologist are conflicted. Most likely these are there because of her excessive vomiting and her esophagus is angry at her but we have to do several things until we can know for sure. We will have to find the right combination of medications in an attempt to empty her stomach out faster and keep her from vomiting. The medications she has been given have been know to cause more vomiting so we are giving it with a dose of Zophran which helps with nausea. Since Kaylie tends to reject things a week or two into something new we will have to give it time to work. If this works we will add one more that will also help in emptying her stomach. It will be a process.

If she does not stop vomiting that is where the second possibility comes in. Since her numbers are just shy of 20 they are not ruling EE out. Vomiting can be a sign of EE which is why he requested the test to begin with.

What does all this mean?!? Dr. An and I have agreed that Kaylie is not your typical child. She has never done things according to the book. I asked Dr. An if it was typical for the numbers to go up and he said no but with her anything is possible. It is possible that we may have tested her right at the beginning of all of this. Again, it is not normal that they change but she did go from 0 to 15 in a year. He said that we will do another upper endoscopy again in a few months and if it is EE the numbers should be much higher.

Overall the results were helpful but incredibly frustrating. It makes me question the issues with the Russell Silver. If she does have Russell Silver it would cause her to throw up as welll. It makes me want to go ahead and just pay the money to test her for that. At this point it would be worth it and relieve any doubts we may have. At this point we need the answers to help us stop hunting for what we think might be wrong. Time will tell as to what we are going to need to do. Right now I need to be blessed with some patience because it is starting to really get to me.