Last night Kaylie had her sleep study. It was exactly what I expected. The building the sleep study was in is the same place as many of her other doctors and procedures so I figured Just walking into the building was going to cause Kaylie to freak out. Sure enough as we walked toward the building the whimpering started. Knowing that Kaylie was most likely going to freak out with everything they had to put on her Jason and I both went. Thank goodness!!!!! I figured she was going and she did.
Right when she started putting on the leads Kaylie started to scream. She screamed so long that she finally gave up and fell asleep on Jason. Jason was awesome. The room was incredibly hot, he was still in his work clothes, and he risked Kaylie throwing up on him and didn't even think twice about comforting his daughter. I am pretty sure he held her for a good hour while they hooked her up.
At about 9 she was asleep on Jason so we put her in the crib. She woke up and started screaming all over. We figured she would not stop unless we left the room. Jason quickly left and I waited outside for her to stop so I could go back in to go to sleep.
The cool thing was that the tech allowed me to go into the room they were in and watch her. Overall, it took a good 30 minutes for her to stop crying. Once she stopped crying she decided to be incredibly stubborn by refusing to lay down. Instead, she grabbed her blankie, put it up to her face like a pillow, and started to fall asleep while standing. Every time she would doze off she would fall back, freak out, grab the rails and then start to cry. This lasted another 15 to 20 minutes. After that she gave up and sat. Now we are started the process all over again but in the sitting position. This lasted a good 30 minutes. I finally decided to go into the parents lounge and relax. The tech came in, told me she needed to make sure the cords were not around her neck, and was going in. Good Luck to her!!!! She came back a few minutes later, told me she fixed the cords and was able to lay her down on her tummy. That was all she wrote. I went into the room at 10:25 to find a baby passed out and snoring. I was so worried about waking her up I question even flushing the toilet. Thankfully, she slept well!
They came in at 5:30 am and unhooked her. The tricky part has been dealing with all of the sticky stuff on her. Overall, she did wonderful! I was grateful she was able to come home and go back to sleep until 10:30. I loved her for that.
The results: Unfortunately, we will not know anything for at least a week and a half. We will let you know as soon as we hear anything.

In this picture Kaylie and I are singing, "If you are happy and you know it." This is the part where we talk about the smile being on her face. Every time we sing it she immediately puts her fingers up to her cheeks. I am pretty sure she learned this at daycare.


In this picture she is calming down. This was almost an hour into it. At this point it is 9:15 ish. This is late considering she is usually in bed between 6:30/7:00. She finally was completely asleep by 10:25. Even I was ready for bed at that point.
I put this picture last because I was really hard for me to look at. I know that she is perfectly healthy and nothing is wrong with her her but it was a little scary to see this. I had to keep reminding myself her head was wrapped to keep her from pulling anything off. She is definitely passed out in this picture.

3 comments:
I just want you two to know that you amaze me and inspire me with your patience and persistance. You have and continue to go through so much with sweet Kaylie. You just give her more love every day even though you still have a long road ahead of you to get her to perfect health. I can tell that you want the best for your angel and you will not give up until it's acheived. She is very lucky to have you as parents. Parents who believe in her and her God enough to keep going, and keep going with a positive loving attitude.
Jess said it perfectly! Y'all are amazing parents...love ya!!
I agree Corrie! You never give up! That has to be where Kaylie gets her determination from...YOU! Everytime I read your blog you inspire me! You and Jason are amazing parents. I hope the sleep study results help answer some of your questions and help you figure out what to do next! As always my prayers are with you!
Post a Comment