18 and counting

Today we hit 18 lbs 2 oz. Her little legs are getting super chunky. She no longer looks sick. What a blessing.

With her increase in fluids they are dropping her formula feeds at night all together. This is one step closer to us not needing the feeding tube. The trick now is for her to take in enough food and maintain/continue gaining her weight. Way to go girly!

The one hiccup we are having right now is with her 2nd feed of the day. She continues to throw that one up. Our guess is it has to do with her meds. They have been giving them to her all at once and that is not something we have done. We think her Prevacid may be upsetting her stomach. We are planning on addressing this with the doctor. The other thing we are wanting to address with the GI doctor is how quickly she is able to empty her stomach. Her reflux was made worse by the fact that she still had a good amount of food in her stomach several hours after she had eaten. This could also be part of the reason she does not eat much.

The honey bear is proving to be successful! She has now finished off 2 4 oz. bears and has started taking water in addition to her milk. They have also taken her off her formula and have successfully switched her to whole milk fortified with Carnation Instant Breakfast. The transition did not phase her. Goodbye 26.00 a pop formula.

Kaylie continues to get better with her eating each day. The amount of food she takes increases each day. Her energy levels have shot through the roof and her speech has improved in an incredibly short time. Even though I am scared to death to take her away from her safety zone I know she will be all right.

Photo Disclaimer: Please ignore the food on her face. It is really hard to get things off of her nose without taking the tape off. The last thing I want to deal with is the tape on her face or risking her tube coming out.












For Thanksgiving we were blessed to bring Kaylie home for 6 hours. It was great. Kaylie was so excited to be home and see her dogs. They had a therapy dog at the hospital the other day and you could just see how excited she was to pet her. Believe it or not I think the dogs were more excited to see her than she was to see them. She definitely loves them both and can't wait to be home to see them.

The hardest part of the day was having to put her in her car seat to say goodbye. I had just finished a four day stretch at the hospital and it was Jason's turn. I keep reminding myself that we only have a week left. Kind of crazy!